I want to tell you that living with chronic illness my entire life has given me a grand insight into life and suffering. It hasn’t. I am not a guru; I can’t make my pain go away through positive thoughts. I can’t rely on modern medicine to always come through for me. Some medications don’t work for me; some cause… Read more »
Here are some random bits about my experience with chronic invisible illnesses. 1. I am living with fibromyalgia and complex PTSD. I was finally diagnosed with fibromyalgia in 2005. The diagnosis of complex-PTSD came in 2018. 2. I’ve had symptoms since childhood; the fibro-flare that really sent me looking for answers came in 2002. 3. The biggest adjustment I’ve had… Read more »
El dolor dicta – the pain dictates Sadly, it has become my mantra over the years. I spent so many years fighting with my body. I pushed through desperately, trying to ignore the pain. The doctor that diagnosed my Fibromyalgia gave me some advice. “This isn’t a death sentence. It will not kill you, but some days you may wish… Read more »
If ever there was a time to take a good look at telehealth options. I have been using telehealth for my therapy and the usual urgent care needs for about two years. Since we travel full-time, it just made sense. Wherever I am, I have access to my medical professionals. I don’t have to go over my whole history every… Read more »
Last week a woman I know said that there are people who have it worse than she does so she had no right to complain. She shouldn’t be upset – she should get over it. That triggered something in me; throughout my life, I’ve heard similar things. “There are millions of people who would love to have your life. What… Read more »
A little over ten years ago, I had my first experience with Eye Movement Desensitization and Reprocessing ( EMDR ). I couldn’t get past my mother’s death and the trauma that came with being the one who had to tell the doctor that my mother wouldn’t want to be on life support. She had made that clear. Dad and my… Read more »
I thought I had been taking care of my self. I thought wrong. I realize now that so many little things we do to ourselves add up to big things. One day I decided to try to pay attention to my inner dialogue. I stopped counting the negative shit I was thinking about MYSELF. Me, the one person I have…. Read more »
If you want to win at life, start by letting people do what they need to do to make themselves happy. Mind your own business. Do what you need to do to make yourself happy. The End
I wander down this path where evil shadows lurk dancing in the darkness, calling upon courage to turn and face the monsters each dying shadow reveals more to take its place more to carry on the battle, more to haunt me with the turn of every corner, I grow more determined @lehnanne
Prepare for a bit of ramble – but I wanted to share the photos as an accountability thing for me and possibly to help others struggling. I left out a lot of details because there are others that have newer and more helpful info – but if you have a question, please feel free to ask. You can contact me… Read more »