a line in the sand

loup
27 October 2018
http://www.jennyodell.com/trumpflowers.html

I heard him say “grab them by the pussy” and I thought – well that is over. We won’t hear from him anymore. Then I saw him stalk Hillary on the stage like the bully predator he is and I thought – well now it is over.

Then I woke up the morning after and Michael told me that he won and I crumpled to the floor. All of the fear that ran through my body. Concern for my friends and family. How did this happen? Didn’t they know he was an empty can rattling – spewing hatred and lies? Gaslighting the country all the way to the White House.

I’ve tried to understand how anyone I knew and loved could even for a minute entertain this clowns bullshit. I have struggled. I heard JOBS, ILLEGAL IMMIGRANT, BENGHAZI, and even a few – HE TELLS IT LIKE IT IS.

Well,  now please allow me to tell you like it is. You voted for a NAZI; maybe you didn’t realize it then. But you damn sure should know it now. If you can continue to support this deranged orange wannabe dictator, then I am done. We share VERY different values. I will hold the memories that I have of our relationship dear, but I am fucking done. Humans are dying because they are not WHITE. Breathe that in for a moment. Humans are dying because they don’t worship the same fictional character. Gnaw on that for a moment. Humans are being killed merely because of the bathroom they use. THE FUCKING BATHROOM.

You may be able to live with that by any measure – but I can not. I will not. I don’t wish you ill; I don’t hate you. But if you can continue to support anything this man says or does – you are doing it without me in your life.

I am not so bold as to believe that I would even make a difference in your decision to stop supporting that disheveled walking adult diaper but I feel better saying it out loud.

Just know if you ever need anything from me – all you are going to get is THOUGHTS & PRAYERS.

 

*thanks to Jenny Odell for the graphic

Eat Much?

loup
22 October 2018

Driving through Salinas Valley in California you become aware of the men and women working in the fields. Tractors and trailers were leading the way for dozens of workers bent over pulling the food that will nourish a nation.

I find myself so grateful for my life. My day trips to places on the BUCKET LIST of millions of people. Food and shelter are taken care of without worry of how to keep it there. I appreciate the food and how easy it is for me to obtain. I appreciate all of the men and women who do this often thankless job.

loup
22 October 2018

write a story

write your story

feel the experience

embrace the pain

make it your ally

loup
22 October 2018

take to the skies

shake off the chains

make your life the one you want

the life you need

be well and dare to be happy

Modify

loup
14 October 2018

There is no user manual for life. No guidelines or rules about how you are supposed to feel when the life you thought you would have is over. When illness takes your dreams, and you end up sitting and crying and working through all of what might have been. We understand how to grieve for a lost loved one. But, when you find out you have a chronic illness – that will most likely in your lifetime not have a cure – your life sort of pauses on itself.

Some of your dreams will fade, wither and die. When you have had a life of pain and discomfort, you can’t sleep, you hurt everywhere – it is hard to describe the joy you have when you finally get a diagnosis. You know there is something to it all. Then it sets in – while you are happy that you know what it all is, the joy fades, and you find despair and grieving for the things that haven’t come. The things that you think you will have time for, the things that you want to do, places on the bucket list. They are gone.

It takes some time, but there is a bit of hope. You do not have to give up on all of the dreams and adventures. MODIFY, modifications to our lives is a great way to make the best of a shitty situation. There are so many tools and ideas to help us navigate our illness.

First, you have to learn – and this one is HARD — you have to learn SELF-CARE and SELF-LOVE.

I could dazzle you with positive hyperbole and tell you things like if you would be happy if you only believed.

Fuck that – grieve, rage against the world — get it out of your system. Then move on. You have shit to do.

There will be days when you can’t face it, and getting out of bed will take every ounce of energy you have. But, there will also be days when the sunshine breaks through the clouds, and you find joy in what is in front of you. It could be anything that makes you smile. The point is MODIFY. Maybe you won’t hike through the wilderness and spot a glimpse of nature at its most wild. Hell, even finding the strength to walk around the store for groceries can seem impossible. That is why we modify to fit our needs whenever possible.

Acknowledging that we can be suckers, we need relief from the pain, sometimes at any cost. We want to hang onto the hope that someday someone will find the one thing that takes it away. The magic pill. We gobble up self-help books on how to cope with pain and how to survive with our illness. Searching for the answer to why we are suffering. Everything happens for a reason; we wouldn’t have been given more than we can handle and so on.

There is no one size fits all when it comes to modifying for our illness – these are just some of the things I have tried that have worked for me. One day I may post about what didn’t work for me – but probably not. I don’t want to discourage others to find what works for them.

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Accessibility

We live in a very tech-obsessed world right now. We know that tech can provide amusement, information, and connections to others. What you may not know is that technology currently offers so many options for people who want and need assistance with everyday issues.
Some of these currently available devices can help you with reminders, timers, entertainment, accessibility to devices throughout your home. With the “Internet of Things” growing exponentially you are almost guaranteed to find something that works for you. You have hubs and assistants. These things are amazing. You can operate a lot of smart home devices with your voice or a few taps on your smart devices. Phones, tv remotes, watches, ovens, faucets, and the list goes on. While you may not need or even want to engage with your stove or refrigerator the point is that you CAN. Simple tasks like setting a timer or reminder, check the weather, listen to music or audiobooks and so on. My Amazon Echo is even set up with several IOT devices that I have in my house. I can ask the Echo to turn on lights, open window shades, also get a single cup of water from the new Delta Faucet.

The primary three are AppleGoogle StoreAmazon

Here are the links their Accessibility pages: Google AccessibilityApple Accessibility
Amazon Accessibility

Delivery Services

Amazon Prime – I have been a Prime member for ten years. Free shipping, streaming movies and tv – DASH, Subscribe & Save and so many other perks make the annual membership fee worth it.

Amazon Prime Now – When you discover you are out of cat litter, or you have run out of toilet paper, Amazon Prime Now can deliver it straight to your door in as little as an hour.

When you don’t feel up to going out, but you are craving that dish from your favorite restaurant, their food delivery is a great option. And you are not limited to your usual delivery foods like pizza and such. This type of service brings “take away” to you. Some of these services go beyond restaurants and of course YMMV based on your location. Worth checking out tho. Besides PRIME NOW some of the other services I use are InstacartDoordashPostmatesGrubHub Many local grocery stores have started to offer delivery and even curbside pick-up. You place your order online or through an app, the staff at the stores do the shopping for you. Compile your cart and deliver it to your door or you can pick it up curbside. They will even load it into your car for you.

Getting your medications have become simple as well. Some local pharmacies have delivery services. Check your pharmacy for an autofill option to go along with delivery. Running out of medications should not be a worry we have. There are also mail order pharmacies.

Entertainment

Audible – It can be pricey, but if your local library doesn’t have the option to get audiobooks online, this can be an excellent modification for readers. I gave up reading “books” a few years back. Just holding up a 300-page book was exhausting. I got an e-reader, and that was doing well for me – unless the brain fog was terrible. I found myself reading the same paragraph over and over and not retaining it. Enter audiobooks.

Just be sure to check if your local library has an available digital catalog first. One place to check is OverDrive.

Services like NetflixHuluAmazon PrimeGoogle PlayYouTube

Disclaimer – I may receive commissions when you click some links and make purchases. It bears no additional costs to you, and this will not impact my suggestions. I would never link to a service or item that I didn’t use myself.