May 12 is Fibromyalgia Awareness Day. But to steal a line from the Autism Awareness campaign – in this house, every day is Fibromyalgia Awareness Day. Fibromyalgia is the cruelest thing. Just when you think you can not go on one more moment the pain and the brain fog lets up — almost to a point where you start to… Read more »
I am a big fan of volunteering my time to causes that I support. With my back being as bad as it was and with the fibro I was unable to volunteer for the last 2 years and it really took a toll on me and my self-esteem. The fibro is so bad that I can’t work a regular day… Read more »
Yesterday I had Radio Frequency Ablation on S1, S2, and S3 nerves. It went well. I love the staff at Duke Pain Clinic – they are the best. They told me I would hurt for a few days and be sore but after that I should be pain free. Well no more pain from this issue. The fibro is still… Read more »
I was in Florida for my birthday visiting family. Someone should send those people the memo, Florida is NOT supposed to be cold. It was warmer here in Chapel Hill. But anywhooze – we made the best of it. Thirty-seven years and this is what I have learned. You can’t love anyone until you love yourself. Laughing at yourself and… Read more »
I have been sort of twisting in the wind lately. A lot of doctors appointments and a lot of pain. Having multiple teeth extracted (the hard way – with a simple local). I am hoping nothing pushes my nerve block back again. I am in desperation here to get the hip pain to back off. I read a few articles… Read more »
I am learning to slow down and enjoy my own pace. I am appreciating the people around me more these days. I can see the effects of gravity on my body, no matter how much I exercise or watch what I eat – aging is upon me. The lines on my face are indicative of my life story, and I… Read more »
I was told by my diagnosing doctor, as if it were some reason to jump up and down with joy, that Fibromyalgia was not progressive and it is not fatal. I think my doctor was full of shit on the first part. If it isn’t progressive why for the last 3 years have my episodes gotten worse and lasted longer… Read more »
Maybe I will start a dream journal. Some of these could be good ideas for stories or movies!! Short version: I am stealing cars – but only to move them a block down or one parking aisle over. Then watching the reaction of the people as they come to the realization that their car has been stolen. Even better that… Read more »
I heard this song in my dream last night. I have weird dreams. Especially on the new meds. It seems they have gotten stranger than usual. I mean how strange is it to hear Paul Simon singing “I love to take a photograph So Mama, don’t take my Kodachrome away” … pretty frickin’ strange I think. Today isn’t shaping up… Read more »
I suppose being normal is overrated anyway. Or maybe that is just something abnormal people say to make themselves feel better about not being normal. I don’t feel normal. Some of the time I just don’t think about how far away from the herd I am and I just live day to day and then there are times that it… Read more »